Alzheimer Europe is a non-governmental organisation (NGO) aiming to raise awareness of all forms of dementia. Formed in 1990, we are based in Luxembourg and operate a common European platform through co-operation among our 37 members, which are all active Alzheimer organisations in Europe (WHO European Region).
We are a lobbying organisation promoting dementia awareness, care and research within the EU institutions. This effort includes the European Alzheimer’s Alliance, a group of more than 125 MEPs in the European Parliament, aiming to make dementia a public health priority.
We are also a source of information on all aspects of dementia through our yearbooks, which focus on different issues linked to dementia (e.g. on the legal rights and protection of people with dementia, social support, care pathways and dementia-friendly environments), the Dementia in Europe magazine, which covers dementia policy at the European level and our monthly newsletter.
We are also active in many European projects funded by the Innovative Medicines Initiative (IMI) and Horizon 2020.
In 2012, we set up a European Working Group of People with Dementia (EWGPWD), comprised of people with different forms of dementia and of different ages and nationalities. The EWGPWD advises our board (through the Chair of the EWGPWD, who is a full board member) and participates (either as a group or as individual members) in all our activities and projects.
We also organise ethical reflection and develop ethical guidelines and positions on topics of relevance to the rights and wellbeing of people with dementia (e.g. on restrictions of freedom, assistive technology, dementia research and ethical dilemmas faced by people with dementia and carers) through the European Dementia Ethics Network (EDEN), which we established in 2009.
Our annual conferences attract people with varied backgrounds in dementia, including people with dementia and their carers, representatives of national Alzheimer associations, healthcare professionals, academics and researchers, as well as policy makers.